Who We Are
Our vision
Patients with complex lymphatic anomalies have the support they need from peer, medical, and scientific communities to lead longer, higher-quality lives.
Our mission
We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.
Our history
Founded by Jana K. Sheets, a patient, in 2007, the LGDA is a 501(c)(3) nonprofit incorporated in the United States and serving a worldwide community of patients, families, researchers, and clinicians.
What We Do
They will create social media content to educate the public and the medical community about four rare diseases grouped under complex lymphatic anomalies - Gorham Stout Disease (GSD), Generalized Lymphatic Anomaly (GLA), Kaposiform Lymphangiomatosis (KLA), and Central Conducting Lymphatic Anomaly (CCLA).
Brought to you by
Montgomery County Volunteer Center
Details
| (301) 502-3282 | |
| info@lgdalliance.org | |
| Louise Murgia | |
| Director of Operations | |
| https://lgdalliance.org/ |
