Volunteer: Fundraising ManagerThe Foundation to Fight H-ABC was established in 2015 to help raise awareness, support families, and fund research for a cure for this rare progressive condition that mostly impacts children. We are looking for an energetic individual interested in supporting our fundraising outreach. Given its rareness we continue to have challenges gaining attention, and looking for someone who is not only passionate about helping kids, but also connected within the county to those who might be interested in supporting our work. Responsibilities include creating and managing fundraiser campaigns, engaging donors and sponsors, and helping to strategize and coordinate events (virtual or in person). Grant writing skills would be a great plus! This role will greatly help us raise awareness and support families living with this condition. The opportunity offers lots of flexibility to match your schedule, and we will recognize your efforts in our newsletter, social media, LinkedIn (if you wish). Our website is h-abc.org Agency: Foundation to Fight H-abc The Foundation to Fight H-ABC was established in 2015 to help raise awareness, support families, and fund research for a cure for this rare progressive condition that mostly impacts children. We are looking for an energetic individual interested in supporting our fundraising outreach. Given its rareness we continue to have challenges gaining attention, and looking for someone who is not only passionate about helping kids, but also connected within the county to those who might be interested in supporting our work. Responsibilities include creating and managing fundraiser campaigns, engaging donors and sponsors, and helping to strategize and coordinate events (virtual or in person). Grant writing skills would be a great plus! This role will greatly help us raise awareness and support families living with this condition. The opportunity offers lots of flexibility to match your schedule, and we will recognize your efforts in our newsletter, social media, LinkedIn (if you wish). Our website is h-abc.org Agency: Foundation to Fight H-abc Need Type: Volunteer Date: Is Ongoing Zip Code: 20853 Allow Groups: No |
Volunteer: Scientific AdvisorThe Foundation to Fight H-ABC is a 501(c)(3) created in 2015 to raise awareness, support patients and families, and raise funds for research. We are looking for someone who has a genetic background who might be interested in helping our organization to advise on research tied to leukodystrophy. H-ABC is a type of leukodystrophy. We are working on a number of projects including AAV gene therapy, ASO, and drug repurposing. Ideal for a retired clinician, scientist or geneticist, someone who has the time and energy with knowledge in this space would be extraordinarily helpful for us as a resource Agency: Foundation to Fight H-abc The Foundation to Fight H-ABC is a 501(c)(3) created in 2015 to raise awareness, support patients and families, and raise funds for research. We are looking for someone who has a genetic background who might be interested in helping our organization to advise on research tied to leukodystrophy. H-ABC is a type of leukodystrophy. We are working on a number of projects including AAV gene therapy, ASO, and drug repurposing. Ideal for a retired clinician, scientist or geneticist, someone who has the time and energy with knowledge in this space would be extraordinarily helpful for us as a resource Agency: Foundation to Fight H-abc Need Type: Volunteer Date: Is Ongoing Zip Code: 20853 Allow Groups: No |